Posts belonging to Category Uncategorized

SSA Fraud Alert!

NEW Pediatric Primer Published!

A new Pediatric Primer has been published. Among the esteemed authors are NJME/CFSA Trustee Kenneth Friedman, PhD and former Trustee Dr. Rosemary Underhill. It includes info for schools (not confined to the school section), discussion of Munchausen’s by proxy, the severely affected who can’t get to school as well as handouts for schools in the appendices. […]

Research Opportunity

See a research candidate request from Leonard Jason Click on the Research Opportunities tab at the top of this page.  

Missing Millions – Part 2

Calling all ME patients, allies, family, friends, caregivers, medical providers and researchers: Let’s join together to make this invisible illness visible! Please join us in Morristown, NJ for two hours on September 27th (location TBD). #MillionsMissing and www.njmecfsa.org is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from […]

Trustee Kenneth Friedman, PHD participated in ME/CFS Awareness Day Panel

ImmuneDysfunction.org celebrated ME/CFS Awareness Day in the U.S. (May 12th, 2016) by holding a live television panel discussion concerning ME/CFS and Lyme disease on CCTV in Burlington, VT. I was honored to be included in the panel which consisted of physicians, an ME/CFS research and a VT State Senator; all of whom informed the audience […]

Medscape posting of 12/03/2015

Medscape published today -” The Year in Medicine 2015: News That Made a Difference.: ME/CFS and the IoM report made the list. See #5 http://www.medscape.com/features/slideshow/public/year-in-medicine2015?src=wnl_edit_tpal&uac=36722FV

ME/CFS Genes Study

Dr. Nancy Klimas is embarking on a Gene Study of ME/CFS. Please see the following link for information about the study. http://www.nova.edu/nim/research/mecfs-genes.html

Art Contest – for new International Pediatric Primer

Severely ill Info

There have been reports of problems with the links below.  Try the ones here or copy and past into address bar. Center.of.CARE@gmail.com Copy & paste address onto email address line. http://www.njmecfsa.org/research-opportunities-2 http://pandoraorg.net/Pandora_Delivers.html

Crisis Contact Info

Click on the “Contact Us” tab above for CRISIS information. The site is available for crisis calls 24 hours a day – everyday.