Posts belonging to Category Uncategorized

Missing Millions – Part 2

Calling all ME patients, allies, family, friends, caregivers, medical providers and researchers: Let’s join together to make this invisible illness visible! Please join us in Morristown, NJ for two hours on September 27th (location TBD). #MillionsMissing and is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from […]

Trustee Kenneth Friedman, PHD participated in ME/CFS Awareness Day Panel celebrated ME/CFS Awareness Day in the U.S. (May 12th, 2016) by holding a live television panel discussion concerning ME/CFS and Lyme disease on CCTV in Burlington, VT. I was honored to be included in the panel which consisted of physicians, an ME/CFS research and a VT State Senator; all of whom informed the audience […]

Medscape posting of 12/03/2015

Medscape published today -” The Year in Medicine 2015: News That Made a Difference.: ME/CFS and the IoM report made the list. See #5

ME/CFS Genes Study

Dr. Nancy Klimas is embarking on a Gene Study of ME/CFS. Please see the following link for information about the study.

Art Contest – for new International Pediatric Primer

Severely ill Info

There have been reports of problems with the links below.  Try the ones here or copy and past into address bar. Copy & paste address onto email address line.

Crisis Contact Info

Click on the “Contact Us” tab above for CRISIS information. The site is available for crisis calls 24 hours a day – everyday.

Governor Proclaims May ME/CFS Awareness Month

Peds Epidemiology-UK

Peds epidemiology -UK- Medscape 2014-02-06

IOM Presentation 1/27/2014

IOM Presentation with slides Jan 2014