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Author: Pat

Research Opportunity

Posted on October 15, 2016October 15, 2016 By Pat

See a research candidate request from Leonard Jason

Click on the Research Opportunities tab at the top of this page.

 

Uncategorized

Info from Bateman Horne Center

Posted on October 11, 2016October 11, 2016 By Pat

https://batemanhornecenter.org/assess-orthostatic-intolerance/

Breaking News, Resources

Gene Study

Posted on October 9, 2016October 9, 2016 By Pat

Dr. Nancy Klimas’ ME/CFS Gene Study at Nova Southeast University is still seeking patient and healthy volunteers. If you are interested, you can send a message to Helpdesk@njmecfsa.org and we will forward it to the study. More information can be found at https://sharkmedia.nova.edu/m…/ME+CFS+Genes+Study/1_06vh90p0

This is a chance for both patients and healthy volunteers to participate.

Breaking News

Follow-Up to Letter to NIH Director Collins

Posted on September 10, 2016September 10, 2016 By Pat

Read about the encouraging results at:

Members of Congress Urge NIH Director Francis Collins to Strengthen Biomedical Research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Breaking News

Missing Millions – Part 2

Posted on August 23, 2016August 23, 2016 By Pat
Calling all ME patients, allies, family, friends, caregivers, medical providers and researchers: Let’s join together to make this invisible illness visible! Please join us in Morristown, NJ for two hours on September 27th (location TBD).
#MillionsMissing and www.njmecfsa.org is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP and follow updates here: https://www.facebook.com/events/1229769917081008/
#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP here: https://my.meaction.net/events/millionsmissing-awareness-day-morristown-nj
Uncategorized

First Approved ME/CFS Treatment in the World

Posted on August 23, 2016 By Pat

Hemispherx Biopharma Announces Major Breakthrough:
Approval for Commercial Sale of Rintatolimod (U.S. Tradename: Ampligen®) to Treat Severe Cases of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in the Argentine Republic First Product Approved for ME/CFS Indication Anywhere in the World.

Ampligen Approved in Argentina – First in the World 2016-08-23

Breaking News

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