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Author: Pat

Survey Request

Posted on February 28, 2015March 2, 2015 By Pat

MECFS_Patient_Quality_of_Medical_Care_Survey 2015-02A

Breaking News, Research Opportunities

Institute of Medicine Report issued 2/10/2105

Posted on February 10, 2015February 28, 2015 By Pat

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness

Read the Report

See a report brief here

Report key facts here

Summaries can be found on many sites including

The JAMA website: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2015.1346

The New York Times  http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=3%3A%2F%2Fwell.blogs.nytimes.com%2F2015%2F02%2F10%2Fchronic-fatigue-syndrome-gets-a-new-name%2F%3F_r%3D3

National Academy of Sciences

“Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is a Legitimate Disease That Needs Proper Diagnosis and Treatment, Says IOM” (National Academy of Science)

About ME/CFS, Advocacy, Breaking News, Publicity, Resources

2015 High School Scholarship

Posted on January 22, 2015March 9, 2023 By Pat

NJMECFSA HS Scholarship Announcement 2015

Click to access full application details and announcement.

Breaking News, Scholarships

IACFSME Primer (Revised 2014)

Posted on December 31, 2014December 31, 2014 By Pat

The ME/CFS Primer for Clinical Practitioners (2014 revision) is available in both print and download versions at the IACFSME website. Click here. Primer

Breaking News, Publications, Resources

Research Tab Updated 10/12/2014

Posted on September 5, 2014October 12, 2014 By Pat

Click on Research Opps above.

 

IMPORTANT Effective September 1, 2014, the NJCFSA Helpline phone was discontinued and replaced by email address that can be used to ask questions.   For those who do not have email, perhaps you can have a friend send a note on your behalf or use a computer at a library.  Include your name, email and a number at which you can be reached (if you do not have email to receive a response) along with your question.  We apologize for any inconvenience.  HELP DESK – helpdesk@njcfsa.org.  If you are in crisis, seek emergency assistance – such as 911  or CONTACT We Care 1-800-SUICIDE.

Breaking News

Research Opportunity June 2014

Posted on June 12, 2014June 12, 2014 By Pat

Click on “Research Opps” tab above to see the latest research opportunity.  June 12, 2104

Breaking News

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