5/20/2013 We discovered that this site was hacked and spam links were posted at various areas. They have been removed and the site will be monitored to hopefully prevent future problems.
Author: Pat
Proclamation
Survey
Below is a link to a survey that will provide information to the FDA about ME/CFS patients in an objective format. Details are available at the link. The survey link is at the end.
The survey should take 30-40 minutes to fill out, depending on how many comments you have. Text boxes on the survey look small but will expand to fit what you type in. Since this is an anonymous survey, the program does not allow us to save partially completed responses. You may want to look at the survey first, think about/ write down your choices, and then return to fill it out when you are ready. You may also choose to have someone else help fill in your answers for you after you have informed them about your choices.
If you want your answers to be part of the results shared at the FDA meeting, please complete the survey by APRIL 17, 2013. The survey will remain open until May 10, 2013 and all responses submitted will be included in the final report to FDA in August.
THANK YOU for your participation!
The survey and complete details are at: http://kwiksurveys.com/s.asp?sid=mnwykzr9g2ae1l5112627
We recently learned that there was an issue when accessing this site from a mobile device. The issue has been corrected and will be monitored to hopefully prevent future problems. Thank you to the person who reported the issue.
Stakeholders meeting
“FDA Workshop on Drug Development for Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME)”
April 25-26, 2013
This is a FIRST for ME/CFS.!
For your information, FDA has posted a draft agenda for their
upcoming Workshop on CFS Drug Development at
http://www.fda.gov/Drugs/NewsEvents/ucm319188.htm
Upcoming Mass CFIDS/ME & FM Association Lecture
SAVE THE DATE – Saturday April 6, 2013
SPRING LECTURE “THE SCIENCE OF SLEEP”
The Massachusetts CFIDS/ME & FM Association is pleased to announce Jo Solet, Ed.M., Ph.D, OTR/L as the keynote speaker. See http://www.masscfids.org for full details.