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Category: Advocacy

June 2024 Proclamation!

Posted on May 1, 2024May 1, 2024 By Pat
Advocacy, Breaking News

Millions Missing Event

Posted on May 11, 2018May 11, 2018 By Pat

Advocacy, Breaking News

“Unrest” Presentation – Additional Info added 8/30/2017

Posted on August 24, 2017September 15, 2017 By Pat

SAVE THE DATE!

The award-winning documentary “Unrest”  will be presented on Sunday 10/15/ 2017 – 2 PM at Hackensack UMC at Pascack Valley 250 Old Hook Road, Westwood, NJ. http://NJ http://www.hackensackumcpv.com/directory/directions/

Don’t miss the opportunity to see this acclaimed documentary!

Video Preview: https://m.youtube.com/watch?v=MWIc9mKedF4

Presented by Bergen ME/CFS/FM Support Group and NJME/CFSA.Additional Information – 8/30/2017

UNREST describes the physical and emotional journey of one woman’s experience with a debilitating illness. Jen Brea, a Harvard Graduate, documents her struggle to find a diagnosis, her discovery of ME/CFS and chronicles the story of people around the world who also live with this illness. This movie illustrates the lack of knowledge and treatment options by our medical professionals for  ME/CFS patients. Through perseverance and the support of her family, Jen Brea documents her struggle for a better life. Her goal is to take the discussion of ME/CFS beyond the darkened bedrooms  of patients and to share this movie across the country and around the  world. Jen hopes to raise awareness,  increase research,  to achieve validation of MECFS and ultimately to find a cure .

Please RSVP to UNRESTRSVP@gmail.com if you can join us  on Sunday October 15. 2017 at 2 pm.  We need to track the number of attendees. This event is Free. Donations are welcome.  There is no penalty if you need to cancel.  We need to have an idea of the number who will attend.

 

Advocacy, Breaking News

NJ Governor Christie signs Proclamation

Posted on April 24, 2017April 25, 2017 By Pat

Advocacy, Breaking News

Governor Christie Declares May 2016 ME/CFS Awareness Month

Posted on April 16, 2016April 16, 2016 By Pat

Proclamation 2016

Advocacy, Breaking News

Institute of Medicine Report issued 2/10/2105

Posted on February 10, 2015February 28, 2015 By Pat

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness

Read the Report

See a report brief here

Report key facts here

Summaries can be found on many sites including

The JAMA website: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2015.1346

The New York Times  http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=3%3A%2F%2Fwell.blogs.nytimes.com%2F2015%2F02%2F10%2Fchronic-fatigue-syndrome-gets-a-new-name%2F%3F_r%3D3

National Academy of Sciences

“Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is a Legitimate Disease That Needs Proper Diagnosis and Treatment, Says IOM” (National Academy of Science)

About ME/CFS, Advocacy, Breaking News, Publicity, Resources

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