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Category: Resources

“COVID-19 & ME/CFS” 14 minute video by Nancy Klimas MD (Institute for Neuro-Immune Medicine at Nova Southeastern University)

Posted on March 15, 2020March 15, 2020 By Pat

https://youtu.be/pkGXiJ1jM14 – Link to video

Bergen Newsletter, Resources

Info from Bateman Horne Center

Posted on October 11, 2016October 11, 2016 By Pat

https://batemanhornecenter.org/assess-orthostatic-intolerance/

Breaking News, Resources

Institute of Medicine Report issued 2/10/2105

Posted on February 10, 2015February 28, 2015 By Pat

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness

Read the Report

See a report brief here

Report key facts here

Summaries can be found on many sites including

The JAMA website: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2015.1346

The New York Times  http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=3%3A%2F%2Fwell.blogs.nytimes.com%2F2015%2F02%2F10%2Fchronic-fatigue-syndrome-gets-a-new-name%2F%3F_r%3D3

National Academy of Sciences

“Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is a Legitimate Disease That Needs Proper Diagnosis and Treatment, Says IOM” (National Academy of Science)

About ME/CFS, Advocacy, Breaking News, Publicity, Resources

IACFSME Primer (Revised 2014)

Posted on December 31, 2014December 31, 2014 By Pat

The ME/CFS Primer for Clinical Practitioners (2014 revision) is available in both print and download versions at the IACFSME website. Click here. Primer

Breaking News, Publications, Resources

Social Security Guidelines for ME/CFS as of 4/03/2014

Posted on April 25, 2014April 25, 2014 By Pat

http://www.socialsecurity.gov/OP_Home/rulings/di/01/SSR2014-01-di-01.html

Breaking News, Publications, Resources

Two Primers available

Posted on December 17, 2012January 3, 2013 By Pat

CFS/ME A Primer for Clinical Practitioners – International Association CFS/ME (IACFSME)

International Consensus Primer for Medical Practitioners – International Consensus Panel (ICC)

About ME/CFS, Breaking News, Resources

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We are patients and families with ME/CFS. We are here to support, inform and help you to deal with this serious illness.

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