THANK YOU to all who supported NJME/CFSA during 2024. Donations are used to support the scholarships, printing, postage, and free support groups. Also, physician education is not free. We pay publication costs of research papers placed in medical journals. Donations are essential to our work.
We are also currently seeking people who are interested in becoming board members. Please contact us at HelpDesk@njmecfsa.org or pcl.njmecfsa@ gmail.com.
ME/CFS patients should be able to receive treatment at Long COVID clinics particularly those that are receiving federal funding. The National Academy of Medicine case definition of Long COVID is sufficiently broad so as to include most ME/CFS patients and a demonstration of prior COVID infection is not required.
ME/CFS patient eligibility for treatment is important to establish in view of the anticipated additional funding for Long COVID treatment clinics when the Senator Bernie Sanders’ Long COVID Moonshot legislation becomes law. Senator Sanders’ healthcare team is willing to assist ME/CFS patients should they experience difficulty receiving care at Long COVID Treatment Clinics. ME/CFS patients who are denied treatment at a Long COVID Treatment Clinic should send a summary of their experience to Kenneth.j.friedman@gmail.com for processing and eventual adjudication by Senator Sanders’ healthcare team.
Please share this with all your physicians. Ask them to add it to your records. This a new code in 2023. It is confirmation that ME/CFS is now acknowledged.
As we approach the end of 2022, ME/CFS patients still need treatment and recognition. Your donation to NJME/CFSA can help make that happen. Any size donation is appreciated. If you know someone who might make a donation, please share our message. Donations can be made online or by mailing to NJME/CFSA PO Box 477 Florham Park, NJ 07932. Help us share the message that ME/CFS patients need to be acknowledged
NJME/CFA is a 501(c)(3) not for profit