Category: Uncategorized

Researchers Identify Biomarkers Associated with Chronic Fatigue Syndrome Severity

Posted on By Pat
July 31, 2017

Researchers at the Stanford University School of Medicine have linked chronic fatigue syndrome to variations in 17 immune-system signaling proteins, or cytokines, whose concentrations in the blood correlate with the disease’s severity.

The findings provide evidence that inflammation is a powerful driver of this mysterious condition, whose underpinnings have eluded researchers for 35 years. See full article

https://med.stanford.edu/news/all-news/2017/07/researchers-id-biomarkers-associated-with-chronic-fatigue-syndrome.html

Uncategorized

NEW Pediatric Primer Published!

Posted on By Pat

A new Pediatric Primer has been published.

Among the esteemed authors are NJME/CFSA Trustee Kenneth Friedman, PhD and former Trustee Dr. Rosemary Underhill.

It includes info for schools (not confined to the school section), discussion of Munchausen’s by proxy, the severely affected who can’t get to school as well as handouts for schools in the appendices.

http://journal.frontiersin.org/…/10.33…/fped.2017.00121/full

 

Breaking News, Uncategorized

Missing Millions – Part 2

Posted on By Pat
Calling all ME patients, allies, family, friends, caregivers, medical providers and researchers: Let’s join together to make this invisible illness visible! Please join us in Morristown, NJ for two hours on September 27th (location TBD).
#MillionsMissing and www.njmecfsa.org is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP and follow updates here: https://www.facebook.com/events/1229769917081008/
#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP here: https://my.meaction.net/events/millionsmissing-awareness-day-morristown-nj
Uncategorized

Trustee Kenneth Friedman, PHD participated in ME/CFS Awareness Day Panel

Posted on By Pat

ImmuneDysfunction.org celebrated ME/CFS Awareness Day in the U.S. (May 12th, 2016) by holding a live television panel discussion concerning ME/CFS and Lyme disease on CCTV in Burlington, VT. I was honored to be included in the panel which consisted of physicians, an ME/CFS research and a VT State Senator; all of whom informed the audience of their perspectives on these illnesses. For a look at the discussion, see

https://www.facebook.com/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA-141665745869451

Breaking News, Uncategorized