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Category: Uncategorized
Missing Millions – Part 2
Calling all ME patients, allies, family, friends, caregivers, medical providers and researchers: Let’s join together to make this invisible illness visible! Please join us in Morristown, NJ for two hours on September 27th (location TBD).
#MillionsMissing and www.njmecfsa.org is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP and follow updates here: https://www.facebook.com/
#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP here: https://my.meaction.net/
You may also RSVP and follow updates here: https://www.facebook.com/
#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP here: https://my.meaction.net/
Trustee Kenneth Friedman, PHD participated in ME/CFS Awareness Day Panel
ImmuneDysfunction.org celebrated ME/CFS Awareness Day in the U.S. (May 12th, 2016) by holding a live television panel discussion concerning ME/CFS and Lyme disease on CCTV in Burlington, VT. I was honored to be included in the panel which consisted of physicians, an ME/CFS research and a VT State Senator; all of whom informed the audience of their perspectives on these illnesses. For a look at the discussion, see
https://www.facebook.com/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA-141665745869451
Medscape posting of 12/03/2015
Medscape published today -” The Year in Medicine 2015: News That Made a Difference.: ME/CFS and the IoM report made the list. See #5
http://www.medscape.com/features/slideshow/public/year-in-medicine2015?src=wnl_edit_tpal&uac=36722FV
ME/CFS Genes Study
Dr. Nancy Klimas is embarking on a Gene Study of ME/CFS. Please see the following link for information about the study.
http://www.nova.edu/nim/research/mecfs-genes.html
Art Contest – for new International Pediatric Primer
