There is always someone who cares.
IN CRISIS!
SEEK EMERGENCY ASSISTANCE – such as 911
or
We Care 1-800-SUICIDE (1-800-784-2433)
or
Crisis Text Line
or
Crisis Lifeline – Talk to Someone NOW
or
Additional Suicide Helplines – including resources by state
New Information for NJ Disabled
Disabled people in N.J. just got a benefit they’ve always wanted
ME/CFS Genes Study
NOVA University continues to enroll patients in their genes study.
Medical Scholarship Presentation
Good Day / Bad Day Pictures of Children With ME/CFS – deadline 5/20th!
The federal government is looking for Good Day/Bad Day Pictures of Children with ME/CFS to mount on a parents’ ME/CFS information website. It is part of an Information and Resources site for children with various disabilities.
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) Pediatric Working Group reviewed the revisions for the website. It is looking pretty good, but could benefit from the graphic to make the point that these kids look perfectly “normal” on a good day and look absolutely lousy when sick. Both parent and child must agree to the placement of the photos on an open-to-the-public website.
Photos are needed by Sunday night (May 20th.) Send as attachment to: Kenneth.j.friedman@gmail.com
Thank you,
Kenneth J. Friedman, Ph.D.
CFSAC Pediatric Working Group