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Good Day / Bad Day Pictures of Children With ME/CFS – deadline 5/20th!

Posted on May 14, 2018May 14, 2018 By Pat

The federal government is looking for Good Day/Bad Day Pictures of Children with ME/CFS to mount on a parents’ ME/CFS information website. It is part of an Information and Resources site for children with various disabilities.

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) Pediatric Working Group reviewed the revisions for the website.  It is looking pretty good, but could benefit from the graphic to make the point that these kids look perfectly “normal” on a good day and look absolutely lousy when sick.  Both parent and child must agree to the placement of the photos on an open-to-the-public website.

Photos are needed by Sunday night (May 20th.)  Send as attachment to: Kenneth.j.friedman@gmail.com

Thank you,
Kenneth J. Friedman, Ph.D.
CFSAC Pediatric Working Group

Breaking News

Millions Missing Event

Posted on May 11, 2018May 11, 2018 By Pat

Advocacy, Breaking News

Governor Declares May ME/CFS Awareness Month

Posted on April 30, 2018April 30, 2018 By Pat

Breaking News

2018 HS Scholarship Application * UPDATE – AWARD INCREASE!

Posted on March 21, 2018March 22, 2018 By Pat

2018 HS Scholarship Announcement-UPDATE March

AWARD INCREASE!

Who is eligible?

New Jersey high school senior or recent graduates, physician-diagnosed with ME/CFS.

The purpose of the NJME/CFSA Scholarship is to provide financial assistance to a deserving student who has ME/CFS and wishes to pursue his/her educational goals in college or technical school.

The NJME/CFSA Scholarship is a single scholarship in the amount of $2,000 to be applied toward the student’s tuition or educational related expense.

Breaking News, Scholarships

Leonard Jason announces an upcoming presentation

Posted on March 20, 2018 By Pat

      Image may contain: one or more people and closeup   Leonard Jason

@CenterRes
Following Following @CenterRes
I was Invited to present on QuantiaMD about myths regarding
CFS. This will be used in educating medical professionals regarding this illness.
https://youtu.be/dguHdXZnrm4
A Q&A will occur
the week of May 7-12, 2018
@scra

 

Breaking News

ProHealth’s 2017 ME/CFS Advocate of the Year – Linda Tannenbaum

Posted on February 27, 2018March 1, 2018 By Pat

ProHealth is proud to name Linda Tannenbaum, founder of the Open Medicine Foundation, as ProHealth’s 2017 ME/CFS Advocate of the Year.

See full article  https://www.omf.ngo/2018/02/26/prohealth-angel-among-us/

Breaking News, Uncategorized

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We are patients and families with ME/CFS. We are here to support, inform and help you to deal with this serious illness.

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