Educational Info for parents of children with ME/CFS
http://www.meaction.net/…/omf-shares-resources-to-help-ch…/…
November 9, 2017 By Marilyn Simon-Gersuk Categories: All News, Featured news, ME in…
MEACTION.NET
NJME/CFSA and Bergen ME/CFS/FM Support Group Co-hosted Unrest
NJME/CFSA and Bergen Support group screens film to raise awareness of Chronic Fatigue Syndrome
Myalgic encephalomyelitis affects 1 million Americans, a quarter of whom are left bedridden. Check out this story on northjersey.com: https://njersy.co/2ypeS1U
Unrest to premiere on PBS on January 8, 2018
Check your local station for details
“Unrest” Presentation – Additional Info added 8/30/2017
SAVE THE DATE!
The award-winning documentary “Unrest” will be presented on Sunday 10/15/ 2017 – 2 PM at Hackensack UMC at Pascack Valley 250 Old Hook Road, Westwood, NJ. http://NJ http://www.hackensackumcpv.com/directory/directions/
Don’t miss the opportunity to see this acclaimed documentary!
Video Preview: https://m.youtube.com/watch?v=MWIc9mKedF4
Presented by Bergen ME/CFS/FM Support Group and NJME/CFSA.
Additional Information – 8/30/2017
UNREST describes the physical and emotional journey of one woman’s experience with a debilitating illness. Jen Brea, a Harvard Graduate, documents her struggle to find a diagnosis, her discovery of ME/CFS and chronicles the story of people around the world who also live with this illness. This movie illustrates the lack of knowledge and treatment options by our medical professionals for ME/CFS patients. Through perseverance and the support of her family, Jen Brea documents her struggle for a better life. Her goal is to take the discussion of ME/CFS beyond the darkened bedrooms of patients and to share this movie across the country and around the world. Jen hopes to raise awareness, increase research, to achieve validation of MECFS and ultimately to find a cure .
Please RSVP to UNRESTRSVP@gmail.com if you can join us on Sunday October 15. 2017 at 2 pm. We need to track the number of attendees. This event is Free. Donations are welcome. There is no penalty if you need to cancel. We need to have an idea of the number who will attend.
Researchers Identify Biomarkers Associated with Chronic Fatigue Syndrome Severity
July 31, 2017
Researchers at the Stanford University School of Medicine have linked chronic fatigue syndrome to variations in 17 immune-system signaling proteins, or cytokines, whose concentrations in the blood correlate with the disease’s severity.
The findings provide evidence that inflammation is a powerful driver of this mysterious condition, whose underpinnings have eluded researchers for 35 years. See full article