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New Crisis Number

Posted on July 16, 2022July 16, 2022 By Pat

988 – National Crisis/ suicide number – active 7/16/2022

https://988lifeline.org/current-events/the-lifeline-and-988/

Uncategorized

20th Anniversary of the Consensus Manual For The Primary Care and Management of Chronic Fatigue Syndrome

Posted on June 14, 2022June 14, 2022 By Pat

2022 is the 20th anniversary of the Consensus Manual For The Primary Care and Management of Chronic Fatigue Syndrome. Members of the New Jersey Chronic Fatigue Syndrome Association – NJCFSA (now the New Jersey Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association – NJME/CFSA) lobbied the New Jersey State Legislature for its production.   The legislature made an appropriation for the production of the manual with the instruction that it would be distributed to every licensed physician in NJ.  Drawing on CFS experts in NJ and the greater New York metropolitan area, including five members of NJCFSA, the manual was produced, translated into Japanese and Spanish, and served as the model for the writing of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis’s – IACFS/ME’s ME/CFS:  A Primer for Clinical Practitioners.  The Consensus Manual contains much useful information concerning the diagnosis and patient management of ME/CFS some of which does not appear elsewhere in the medical literature.  A first read or a reread of the Consensus Manual is time well spent.

Kenneth J. Friedman, Ph.D.

http://www.njcfsa.org/wp-content/uploads/2010/08/4-1-Consensus-Manual1.pdf

For some it may be easiest to copy and paste address into a new window.

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EVENT 6/19/2022

Posted on June 2, 2022June 10, 2022 By Pat
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You are invited to virtually attend:

A whole-person health approach to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Lessons for Post-COVID conditions”

Presented by Maria Vera-Nunez, MD, MSBI

Sunday, June 19, 2022 at 4:00 P.M.

Whole-person health is the term the NIH uses for Integrative Medicine approaches to patient care. Dr. Vera-Nunez uses a whole-person health approach to evaluate patients with chronic, multi-system conditions, including ME/CFS and Long COVID. She uses advanced functional medicine testing to personalize treatments. She strives to create a partnership with her patients, considering their preferences and empowering them to acquire skills to support their healing process.

Dr. Vera has been specializing in the treatment of people living with ME/CFS for more than 20 years, having originally worked with Dr. Nancy Klimas at Nova Southeastern University’s Institute for Neuro-Immune Medicine for 7 years. Currently, she is an attending physician at the Whole Psychiatry and Brain Recovery Center in Maryland and a Research Assistant Professor at the Medical University of South Carolina.

This program is being presented jointly by the NJME/CFSA and the  Massachusetts ME/CFS & FM Association, as part of the latter’s Sunday Conversations series. Please join us!

REGISTER NOW [link: https://bit.ly/3wXYIfB  

Unable to attend?  This virtual program will be recorded for later viewing. It will be posted as soon as possible to the MassME Sunday Conversations web page:  [link: https://www.massmecfs.org/sunday-conversations]

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ME/CFS Awareness Month

Posted on May 6, 2022 By Pat
Breaking News

Very Interesting NEW Article

Posted on April 8, 2022April 8, 2022 By Pat

CLASSIFICATION SYSTEM FOR POST-ACUTE SEQUELAE OF SARS CoV-2 INFECTION

Leonard A. Jason and Mohammed F. Islam

https://cajmhe.com/index.php/journal/article/view/146/66

Breaking News

Recent Article

Posted on February 27, 2022February 27, 2022 By Pat

Sharing the latest installment written by a reporter who is working hard to get correct information to the readers. https://www.northjersey.com/…/chronic…/6822157001/

Breaking News

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We are patients and families with ME/CFS. We are here to support, inform and help you to deal with this serious illness.

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