2009 Fall Conference October 18th

Posted on By Pat

Now Available on DVD through the Lending Library

2009 Fall Conference October 18th

at the Sheraton Eatontown Conference Center

Eatontown, NJ

 

Featuring Guest Speakers:

Derek Enlander, MD, MRCS, LRCP Treating CFS & FM by Targeting the Methylation Cycle

Susan Levine, MD, FACP The Diagnosis of CFS/M

E with Some New Research Insights

Jason Newfield, Esq. Professional Advocacy by Objective Documentation and Active Intervention on Behalf of CFS Patients

The DVDs of NJCFSA's Fall 2009 Conference are now available for purchase. To purchase, please mail a check made payable to NJCFSA for $15.00, (shipping included), to:

NJCFSA Library
PO Box 477
Florham Park, NJ 07932

The DVD and DVDs of other NJCFSA conferences are also available to NJCFSA members through the NJCFSA Library.

zp8497586rq
Conferences

ANYWAY

Posted on By Pat

 

People are unreasonable, illogical and self-centered.
Love them anyway.
If you do good, people will accuse you of selfish ulterior motives.
Do good anyway.
If you are successful, you win false friends and true enemies.
Succeed anyway.
The good you do today will be forgotten tomorrow.
Do good anyway.
Honesty and frankness make you vulnerable.
Be honest and frank anyway.
People favor underdogs but only follow top dogs.
Fight for some underdogs anyway.
What you spend years building may be destroyed overnight.
Build anyway.
People really need help but may attack you if you help them.
Help people anyway.
Give the world the best you have and you’ll get kicked in the teeth.
Give the world the best you’ve got
anyway!

 

Many thanks to Jacui Niederle, co-leader of Middlesex Co.
Chapter for sharing this wonderful piece with us.

Inspiration

Next Time Someone Asks That Question …

Posted on By Pat

Q:  What kind of work do you do?

CFIDS Answer: I have a non-traditional job.

Q:  What is it that you do?
A:  I work a 24-hour, seven days a week job that I’ve had for 4 years without vacation time.

Q:  What kind of crazy job is that?
A:  It does sound crazy, and especially because IT chose ME.  It is the hardest work I have ever done.   I don’t know day to day what the job requirements will be.  And I don’t have the choice to quit it, as much as I’d like to.

Q:  Why can’t you leave it?
A:  My work is to live with and heal from a very severe, chronic illness that has been around a long time but it still is not well understood.  It’s like having your own business in that only one person – me – knows as much about my body and what I should do each day to encourage it to do better.

Q:  I never thought of living with a chronic illness as work.  Do you miss traditional work?
A:  There’s nothing I’d love more than to get well and work in a normal job.  But as long as it is out of the question, I have to do the best I can with my current work.

Q:  Do you at least get benefits from your work?
A:  Not tangible ones like paid holidays, insurance or a savings plan, and I could really use one of those.  But I do get a lot of skill-building, like people in traditional work.

Q:  What skills could being chronically ill give you?
A:  Patience.  Assertiveness.  Developing boundaries.  Humor.  Asking for help.  Setting priorities.  Letting go of what I can’t control.  Listening.  Better communication.  Courage.  Tackling impossible challenges.  Creativity.  Resourcefulness.  Imagination.  Making do.  Stretching limited resources.  Flexibility.  Pacing.  Trusting myself.  Trusting others.

Q:  (Speechless.  Wanders off thoughtfully.)

Many thanks to Judy Kruger for creating
and sharing this original piece!

Inspiration